Shared Lives Plus

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What is Shared Lives?

Shared Lives is a CQC regulated community-based accommodation and care and support model that provides an anchor in a carers home.

The carer will have been assessed and received training to be a Shared Lives Carer and will ‘share their life’ with the supported person. This is likely to include taking part in family life and community activities as well as developing independent living skills and making decisions about their own lives as well as personal care if needed.

It can be either living with the carer of visiting for respite or day support.

Who can access Shared Lives?

Shared Lives has traditionally been a service for adults with a learning disability. However, it has proved itself to be a really successful option for young people transitioning from children’s to adult services who have a Care Act Need for support and accommodation, as described in the Care Act below:

  1. The adult’s needs arise from, or are related to, a physical or mental impairment or illness.
  2. As a result of the adult’s needs, the adult is unable to achieve two or more of the specified outcomes (managing and maintaining nutrition, managing personal hygiene, managing toileting needs, being appropriately clothed, being able to make use of the home safely, maintaining a habitable home environment, developing and maintaining personal relationships, accessing and engaging in work, training, education or volunteering, making use of the local community inc. public transport and recreation activities and carrying out caring responsibilities for a child ).
  3. As a consequence of being unable to achieve these outcomes there is, or there is likely to be, a significant impact on the adult’s wellbeing

It is worth considering Shared Lives where a young person has an EHCP, Autism, is neurodiverse or has complex trauma which is impacting on the areas listed above so that the relevant adult social care team and Shared Lives can advise on eligibility or in some areas this can be funded by Children’s Services, as leaving care support and accommodation provision.

What age can people access Shared Lives?

Planning starts from 14 -16 but usually the arrangement starts between a young persons 16th and 18th birthday.

At 18, if a young adult has Care Act eligible need, Adult Services take over responsibility. Children’s Services will continue to provide some support to the young adult as they are care experienced, led by the Personal Advisor.

If the young person doesn’t have a Care Act need then Children’s Service can fund a placement from 16 or 18, depending on the local schemes Statement of Purpose.

How is it different from fostering and Staying Put and supported lodgings?

Fostering: It is like fostering in that it is individualised care and support in the carers home. Like fostering, it is regulated, although by CQC rather than Ofsted.

The biggest difference is that the supported person is an adult and has choice and control over their life. This means they will be supported to manage their finances, make decisions about how they spend their time and who they spend it with.

For example, a Shared Lives carer wouldn’t be able to instruct someone to be home at a particular time or take their phone away from them, but they would likely have expected behaviours / house rules, just like any other group of people or family who live together.

Staying Put: It is also like Staying Put, in that the supported person is now an adult and living in the carers home.

However, in a Staying Put arrangement the carer is no longer a Foster Carer and covered by regulation and the arrangements is time limited.

Currently this is usually until the young adult turns 21 but it practice it tends to be less time than this.

There is also no requirement around the levels of support and training provided to Staying Put Carers. Best practice is for Shared Lives to be used rather than Staying Put where the care experienced young adult has eligible Care Act need.

Supported Lodging: Supported Lodgings is most like Shared Lives as it is for young people who are 16+, is provided in the hosts home and is regulated.

However, it is lighter touch support (max. 10 hours per week), focusing more on the person’s housing need and is time limited.

Who doesn't Shared Lives work well for?

If a young person just wants a room to stay in or is already independent, it is likely that Shared Lives may not be quite right for them.

Also, young people who need constant supervision, or more than 2 to 1 support are also unlikely to find this the right option for them.

How long can someone stay in a Shared Lives arrangement?

We love this answer – it is for as long as they need to.

Obviously, carers do retire, or their situation changes but if Shared Lives is the right option we would do all we could to find another match for the supported person so they can remain part of Shared Lives.

Usually supported people move on to independent living when they are ready, but they take the network of relationships that they built in Shared Lives with them.

What is the referral process?

The referral process varies between authorities and on whether the arrangement will be funded by Children’s or Adult services.

We advise you contact your local Shared Lives Scheme – contact details here to ask about your local referral processes.

Who pays for it?

Up until a young person turns 18 all costs are usually covered by Children’s Services. After this, there are three elements to the payment. This includes:

  • Housing benefit or the housing element of universal credit at the one bedroom rate (available to care leavers)
  •  A contribution from the young person for bills such as food, internet and utilities (and housing if they are working)
  • A support payment to the carer that comes from the Shared Lives Scheme and is based on the assessed level of need of the young person.

What is my role?

As a Children’s Social Worker your role is usually to consider Shared Lives as an option for young people who you think may benefit from a Shared Lives arrangement. If they are interested then you will also be key in making sure everyone is communicating well with each other, whilst keeping the view of the young person at the heart of the planning. This means you will likely be checking that the right people are involved and that you have made the referral to adult services, if applicable, and to the Shared Lives scheme. The right people are likely to include the young person, Personal Advisor, current carer or key worker in their placement, Independent Review Officer, Adult Social Worker, Shared Lives Scheme Worker, family member and anyone else such as their education placement, health professionals and maybe an advocate or mentor.

As a Personal Advisor, your role is to bring the leaving care expertise and help the team think about the young person’s needs resulting from them having been in care. This is likely to include sharing the pathway plan, and making sure this forms part of any assessments and is the key document all professionals and the young person is inputting into. Finances for young people in Shared Lives can be complicated, so they will need your support to make sure that they are claiming any finances they are eligible for and that they (and their Shared Lives Carer) are aware of the Local Offer and what is available to them.

As an Independent Review Officer your role will be to make sure things are happening in a timely way, including starting to raise awareness of Shared Lives as an option from 14. It is important that you are aware of the referral process for Shared Lives in your Local Authority, so that you can connect everyone together to carefully plan for the young person. There are two main groups, those who are in foster care where a foster carer is interested in transitioning to Shared Lives with the young person, and young people where it would be a new arrangement, they may be in supported accommodation, residential or a fostering placement, that cannot continue for whatever reason.

As an Adult Social Worker your role will be to do the Care Act Assessment and ensure that the Shared Lives Scheme have the information they need to organise an arrangement in a planned way. You will also be securing the funding for the arrangement.

As a Supervising Social Worker your role is to provide information to the Foster Carer about Shared Lives, particularly about being registered as a Shared Lives Carer and a Foster Carer, linking them in with the Shared Lives Scheme early so they can find out more about the scheme and start the assessment process if they want to become a Shared Lives Carer.

How can a young person find out more?

They can:

  • read the FAQ’s for young people, or the easy read version available from the scheme
  • speak to the scheme who may be able to put them in touch with a young person who is already living in a Shared Lives arrangement. They could also meet with one of the Shared Lives Team who will be able to answer their questions.
  • read the leaflet below

 

How can a foster carer find out more?

They can:

  • read the FAQ’s for Foster Carers, available from the Shared Lives scheme,
  •  speak to their Fostering Team who should have information about Shared Lives.
  • Or speak with the scheme who may be able to put them in touch with another foster carer who has transitioned to Shared Lives.

How can I find out more?

You can speak to your local Shared Lives scheme who will be happy to answer your questions and share more information.